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Cure for AHC Presents Let’s Cure AHC NC Golf Tournament

Cure for AHC Presents Let’s Cure AHC NC Golf Tournament

LOCHMERE COUNTRY CLUB, CARY, NC – 25 Jul, 2017 – Cure AHC will present Cure AHC NC Golf Tournament, taking place at Lochmere Country Club, Cary, NC on August 11, 2017.

Cure AHC is proud to bring Cure for AHC NC Golf Tournament to Cary, NC for the first annual Let’s Cure AHC Golf Tournament.

Lochmere Country Club, Cary, NC will be the scene of fun and fundraising August 11, 2017, to help research momentum moving forward for AHC – Alternating Hemiplegia of Childhood

  • Check-in begins at 11, lunch served at 11;30. Shotgun start at 1 PM.
  • This will be a “scramble” format with teams of 4 (note details about teams below). 
  • There will be prizes for top fundraisers (you will receive an email with a fundraising page you can customize), and for your performance (or lack thereof ) on the links! It is easy to register for and to sponsor this momentous event.
  • We have a $10,000 hole in one challenge: Consider yourself signed up!  Thank you for agreeing for us to pitch in and help with your upcoming Golf Tournament at Lochmere on August 11th.  This will serve as our confirmation that we will present a $10,000 Hole In One Challenge … $5,000 to the player and $5,000 to your Charity.
    • Here’s what we will bring for the $10,000 Hole in One:
    • We’ll provide a qualified, golf-involved person to present the Hole in One …. no volunteers are needed. 
    • On average, 80%+ of players will donate $10 for the Hole in One Challenge.
    • Every participant will receive a 25% Discount on all FootJoy purchases … with free shipping to their home.
    • A Sleeve of balls will be given to the “4th Best Shot” in each Group.
    • If every player on a team enters the Challenge, the team gets a short Putt for Birdie, which speeds play.
    • Any Hole-in-One wins $5,000 for the player and $5,000 for your Charity.

So, we provide all manpower and all gifts/prizes, pay for the Hole in One Insurance … and write you a check for 30% of the proceeds from our Challenge.  

Team Captains can name their team and choose Foursome Registration as the payment choice to save $100 for the group (a foursome registration is $500 for the 4, individuals are $150. The other members of the team can add their team name and skip the payment section (and reimburse your captain  ) Email [email protected] with any questions.

And the top player wins a week stay at a 5 Star eco resort in Mexico” a week’s accommodations at Hacienda Tres Rios, a 5 star eco resort in beautiful Playa del Carmen, Mexico! “

Why a CURE for AHC?

SAD NEWS FOR THE AHC COMMUNITY: TWO AHC CHAMPIONS HAVE PASSED

It breaks our hearts to share this news. Our community has lost two AHC Champions recently.

AHC Champion Finnegan (ON, Canada) aged 12 died accidentally on August 6. His story actually made Canadian national news, as he had gone missing. His dad spoke of Finnegan’s life and death in The Hamilton Spectator.

AHC Champion Sandra (Spain) aged 29 passed away on August 10. According to our sister association in Spain (A.E.S.H.A.) her condition worsened suddenly without apparent cause.

We send our deepest sympathies to both families for their losses.

Become a Sponsor and show your support on finding a Cure for AHC http://cureahc.org/pay-nc-golf-registrationsponsorship/.

Unable to attend the Cure for AHC NC Golf Tournament but still want to help to find the Cure for Alternating Hemiplegia of Childhood. Please make your tax deductible donation online at: http://cureahc.org/donate/donate-now/

SPOTLIGHT: AHC CHAMPION MATTHEW (NC, USA)

(As shared by Matthew’s dad, Cure AHC President Jeff Wuchich) Renee & I welcomed Matthew into the world July, 2007. It was a whirlwind from the start. He landed in the NICU hours after birth with abdominal issues that soon resolved, but doctors thought in the meantime he had a seizure. Then came a 10 day ordeal of medically induced coma, a plethora of tests, and no conclusions. Doctors chalked it up as a “fluke” and sent us home to love on our newborn son.

Over the next 6 months Matthew would spend many days in the hospital, first with nystagmus at 2 months (again thought of as seizure, with seizure meds prescribed), then dystonia at 4 months . Then the paralysis came at 6 months. It would start in one arm and quickly overtake his entire body. He would remain like that (save 15 minutes or so after awakening) for days. It was heartbreaking. The cycle would repeat every 2 weeks or so. We spent the next 12 months searching for answers, sending video after video to neurologists around the world. Fortunately in North Carolina children who have difficulty like Matthew become eligible for developmental services. He began to receive PT, OT, & Developmental Therapy. He continues to receive these services (and speech to boot) in school to this day. (Read more about Matthew’s story here)

Lochmere Country Club, Cary, NC – August 11, 2017—Cure AHC will present Cure AHC NC Golf Tournament, taking place at Lochmere Country Club, Cary, NC on August 11, 2017

Proceeds will help fund ongoing research projects at Duke University and other centers around the world.  See you there!

About  CURE AHC 

WHO WE ARE

A Non-Profit organization, Cure AHC exists to find a cure for Alternating Hemiplegia of Childhood (AHC), a rare and painful children’s neurological disorder, by raising awareness & fundraising and to facilitate the collaborative research needed to discover effective treatments and a cure for every case of Alternating Hemiplegia of Childhood (AHC) worldwide.

Cure AHC founders, Jeff & Renee Wuchich, are the parents of 9 year old Matthew who is afflicted with Alternating Hemiplegia of Childhood (AHC), a rare and incurable children’s neurological disorder. Along with other AHC parents, physicians, scientists and children’s rare disease advocates, they tirelessly work to meet this disorder head on to make a difference for all who suffer from Alternating Hemiplegia of Childhood (AHC). You can make a huge difference by participating in sharing information about Alternating Hemiplegia of Childhood and Cure AHC’s progress, events and efforts to raise desperately needed research funds.

VISION STATEMENT

Cure AHC envisions a world where Alternating Hemiplegia of Childhood no longer robs its sufferers of the chance to participate fully in life. We seek a time where no case goes undiagnosed for lack of awareness. We believe that collaboration is critical for those suffering now, and for those yet to come.

MISSION STATEMENT

Cure AHC was created in order to raise funds necessary to facilitate research aimed at treating and ultimately curing Alternating Hemiplegia of Childhood (AHC). We do this by partnering with physicians and organizations worldwide and supporting families who live with AHC every day. By bringing together donors, researchers, and families we believe a cure for AHC is within reach.

Media Contact
Company Name: Cure AHC
Contact Person: Jeff Wuchich
Email: [email protected]
Phone: 919-412-1870
Country: United States
Website: www.cureachc.org